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BOOKMARK THIS: Trove of PANDAS facebook pages, groups, websites and videos
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8/14/2011  •  Comment
By emst

Wow what a difference in the last couple of years. This is a post to save. Look at the kids with PANDAS running their own websites, incredible! IMO they will be the key to understanding this condition as they recover and grow. We're finding as our dd recovers and matures she is able to articulate and even anticipate symptoms - we're better able to nip them in the bud. Would that the whole world operated this way. There is such a big part of me as a parent that wishes she could just forget it all - don't we all. At the same time I'm proud that she is aware, willing to help and blessedly not raging at PANDAS.

Props to PANDAS facebook pages, groups, websites and videos
by Spreading awareness of Pandas to the Mid West on Thursday, August 4, 2011 at 9:33pm

FACEBOOK PAGES

Spreading awareness of Pandas to the Mid West - http://www.facebook.com/pages/Spreading-awareness-of-Pandas-to-the-Mid-West/247008621995244

Beth Alison Maloney - http://www.facebook.com/pages/Beth-Alison-Maloney/233696275037?ref=pb

Saving Sammy: Curing the Boy Who Caught OCD - http://www.facebook.com/pages/Saving-Sammy-Curing-the-Boy-Who-Caught-OCD/104887432702?ref=pb

PANDAS Foundation - http://www.causes.com/causes/376853?ref=pb

P.A.N.D.A.S. Network - http://www.facebook.com/pandasnetwork?ref=pb

P.A.N.D.A.S Resource Network - http://www.facebook.com/pages/PANDAS-Resource-Network/184731978233686?ref=pb

The Latimer P.A.N.D.A.S Group -http://www.facebook.com/pages/The-Latimer-PANDAS-Group/185378388178803?ref=pb

P.A.N.D.A.S. - P.I.T.A.N.D. (P.A.N.S.) Awareness Ribbon & Research Support -http://www.facebook.com/pages/PANDAS-PITAND-PANS-Awareness-Ribbon-Research-Support/104784939604627?ref=pb

Pepsi Refresh Project P.A.N.D.A.S. -http://www.facebook.com/ProjectPANDAS?ref=pb

P.A.N.D.A.S Autoimmune Disease Find a cure - http://www.facebook.com/pages/PANDAS-Autoimmune-Disease-Find-a-cure/193646440654997?ref=pb

My Body, My Enemy: The Lives of People with Autoimmune Disease - http://www.facebook.com/mybodymyenemy?ref=pb

PANDAS - http://www.facebook.com/pages/PANDAS/132332230138310?ref=pb

FACEBOOK GROUPS

"Parents"of Kids with PANDAS/PITAND/PANS -Private Group;Intro Docs on Right- http://www.facebook.com/groups/134746729910966/

Kids with PANDAS/PITAND - http://www.facebook.com/groups/148976378501582/

P.A.N.D.A.S./P.I.T.A.N.D./P.A.N.S. INTERNATIONAL - http://www.facebook.com/groups/209188422425603/

PANDAS -Pediatric Autoimmune Neuropsychiatric Disease Associated with Strep - http://www.facebook.com/groups/110031982380409/

PANDAS Resource Network - http://www.facebook.com/groups/110603062314494/

P.A.N.D.A.S. Awareness - http://www.facebook.com/group.php?gid=127710290606544

ThinkPANDAS- http://www.facebook.com/group.php?gid=353556961539

Supporters of children with P.A.N.D.A.S - http://www.facebook.com/group.php?gid=123627147654483

Promote awareness of PANDAS, caused by Strep throat! - http://www.facebook.com/group.php?gid=163792804077

 

WEBSITES

http://www.microgiving.com/profile/vablavat

http://savingsammy.net/

http://www.internationalpandasfoundation.org/obsessivecompulsivedisorder/Home.html

http://pandasnetwork.org/

http://pandasresourcenetwork.org/

http://www.pandas-pitandawareness.org/

http://www.pandas-pitandawareness.org/Downloads.php

http://www.picbadges.com/streppandas/2098589/?fb_ref=social_bar&fb_source=profile_oneline (spreading the awareness pic bage)

http://www.picbadges.com/pandas-pitand-awareness-ribbon/1703237/ (pandas-pitand ribbon pic bage)

http://www.picbadges.com/pandas-awareness/1768432/ (pandas awareness pic bage)

http://www.picbadges.com/i-support-pandas-research/230839/ (

Tags: PANDAS, P.A.N.D.A.S, PANDAS Facebook
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