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PANS kids swallowing problems? Blog Interesting tid bit, one of our kids does seem to have swallowing problems during PANS or PANDAS flares that seem to last 3-5 days or so, anyone have this problem? Anyone have any treatment suggestions? "P.A.N.D.A.S. Network Another bit of info.. PANS kids can have involuntary muscle movements in the throat that makes it feel like they are choking. This may be why some kids refuse to eat and say they are scared of choking. It may physically feel like they are going to choke by the moving or tightening of a muscle. Dr, Swedo said aswallowing study may be indicated in the future.?

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PANDAS: A Scary and Controversial Disorder Discussion The Wall "Could a sudden, severe change in a child's behavior be brought on by something as common as strep throat? Many experts -- and distraught parents -- say yes. We dig deeper to find out what's going on, and which children are at risk."

7 Signs of PANDAS:

- Developmental regression A child may suddenly start acting much younger than his actual age. He'll often throw temper tantrums or revert to baby talk.

- Acute severe onset of ritual behaviors The child suddenly engages in frequent hand-washing (a common symptom of OCD) or can't come to the dinner table without bringing nine specific book...

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IVIG Study Needs Participants - act quickly Blog A Placebo-Controlled Trial of Intravenous Immunoglobulin (IVIG) for PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) URL link/ IVIG is a large component of PANDAS recovery for many welcoming some kids back to full function, to joyful lives. If nothing else follow this study for outcomes. What is the OCD piece of PANDAS and what is the key to taking it down? Well be watching this NIH study.

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Why was the second-grader suddenly overwhelmed with anxiety and obsessions? Discussion The Wall Attached to this P.A.N.D.A.S. group discussion is an article published in the Washington Post Health and Science section. Tuesday, September 27, 2011.

Thought the group would find it interesting ...

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Can Your Child Catch a Mental Illness? Discussion The Wall
Story Published: Jul 22, 2011 at 9:25 AM PDT -
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Have you ever heard of PANDAS? When Beth Maloney’s middle son Sammy was 12, he was diagnosed with Obsessive Compulsive Disorder and then Tourette Syndrome. Confined to their home by the horror of his illness, a lifelong placement seemed his likely fate -- until Beth learned that a strep infection might be the cause (a disorder known as PANDAS). Most doctors said she was wrong but she followed her mother’s instincts and now her son Sammy is fully recovered.
Beth joined us to share her story detailed in her book, Saving Sammy-- A Mother's Fight to Cure Her Son's OCD. Children affected by PANDAS can have any combination of the following symptoms:

- Cognitive inflexibility, difficult to reason with, as if stuck on an idea,
- Obsessive/repetitive/compulsive argumentative behaviors,
- TICS (repetitive vocalizations of body movements),
- Tourette Syndrome,
- Attention deficits and oppositional/defiant behaviors
- Eating disorders

For more information on PANDAS, click here. URL link...

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Of course this book is a slog - PANDAS Blog Just finishing Out of the Fog - Into the Light on my Kindle,URL link Also bouncing through my head is a note from my mom the other day that shes caught a rerun of Mystery Diagnosis the Boy who only Hopped URL link Mom said that the story unfolded a bit slowly. My immediate thought was well, yeah, thats because it takes 4 years to get a diagnosis but I did not zing that back in an e-mail. Like Saving Sammy URL link Out of the Fog - Into the Light is tedious in the unfolding drama unless youre a PANDAS parent in which case its a page turner. Set in the late 90s author Elizabeth Ann Eberhardt who ...

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Annotation: PANDAS: a model for human autoimmune disease Blog URL link

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